Any one familiar with India will not question the existence of destitute or the life they are forced to lead - their plight gets compounded when they are struck with a disease that cripples them so much that they are unable to fend for themselves.

Mrs. Sakunthala (name changed) was picked up by the police from the platform and admitted in a Govt. Hospital, where we found her on the floor, near the toilet with not a yard of clothing on her. She had a massive fungating tumor of her breast, crawling with maggots - no one wanted to go anywhere near her. We had her transferred to the Hospice where she was cleaned, clothed and made to look like what she was meant to be - a human being. She died peacefully in the Hospice after a couple of days, surrounded by people who cared for her. The last rites were done by the Hospice.

She is one of the many destitute cancer patients, whom we picked up on receiving information, some from the roadsides and some from the hospitals. Many others are brought to us by social workers. These patients constitute only a miniscule of the destitute population scattered all over the country and - if we do not care who cares?

Many patients are abandoned by their families, for reasons, that may be convincing in some, perhaps not others but still the fact remains that they have nowhere to go.

a) Poverty Three hundred million Indians now live below the poverty line. There is an eternal struggle for existence, a scramble for the next meal. When a healthy person has to struggle to survive, a sick person does not stand a chance. The family transfers the patient to a Government Hospital, give a false address and then do the disappearing act.

Miss. Banu (name changed) was a 14-year-old who had Ewing Sarcoma of her leg. She was one of five motherless children who had a drunkard for a father, who used her sickness to make her beg on the streets. When she became very sick, he admitted her in a Govt. Hospital. The child underwent an amputation of her leg, but when the time came for her discharge, the father was nowhere to be found. Efforts to trace her family with the help of local police were of no avail - she was transferred to the Hospice, where she spent the rest of her days in as much peace and comfort as on can get under such circumstances.

b) Lack of living spaces Often large families live in small spaces - huts or single rooms - and to have a patient with foul smelling wounds would be near impossible. The neighbors too start complaining, hence out of compulsion, these patients ate either driven out or abandoned in hospitals.

Mrs. Radha (name changed) belonged to the upper middle class and she had a loving family - husband, son and daughter who doted on her. When she developed cancer of the breast, the family gave her the best care, surgery, RT and CT in the so-called five star hospitals, but inspite of treatment, the disease progressed. When we saw her she was in a grossly advanced stage with frank gangrene of her arm and chest wall with pus pouring from everywhere. At that stage none of the private hospitals or nursing homes were prepared to take her in - and the neighbors (the family was living in an apartment) started objecting to the smell emanating from her room. The family were desperate for help - and that was when Jeevodaya stepped in.

c) Abandoned by spouses Sad is the story of young women developing breast or cervical cancer. This is a good reason for her husband to forget her and turn elsewhere. Not that wives do not desert their husbands - many a time the wife runs away to her parents home, but the usual story is of the wife having to seek employment, often doing menial work to feed and clothe her children, leaving her with little time to look after her husband (if she does come to see him she often gets beaten up by the husband because he suspects her fidelity!)

d) Widows and spinsters Widows and spinsters are a deprived lot - especially the latter as no one feels morally obliged to look after them.

Miss. Parvathy (name changed) was a teacher in school. As long as she was earning and contributing to the family, she was a welcome member in her brother's house. However when she became bed ridden with cancer of the breast her brother insisted that his other sister should take turns to look after her and sent her there - where she was politely refused entry. Heart broken she found her way to the Hospice.

a) Large foul smelling wounds : Mrs. Kanthi (name changed) a patient with cancer of the breast complained that she felt nauseated all the time and could not eat - reason? She could not tolerate the smell emanating from her wound "if I myself cannot tolerate the smell how can I expect others to come anywhere near me" she mourned pitiably.

b) Disfiguring lesions of the head and the neck : Malignancies of the head and the neck make the patient look grotesque. With high prevalence of oral cancer - thanks to tobacco - some patients have half their faces missing. Adults and children alike dread to go near them. Unfortunately these patients have to bear the burden for long periods because these are slow growing tumors.

Miss. Barthy aged 20 had a maxillary antral growth and her face was so distorted that even the doctors found it difficult to face her. She was a recluse in the house, confined to her room where no one except her parents would go. She felt so depressed that she stopped eating and was starving herself to death. It was at this stage that her parents brought her to the Hospice. With all the love, care, and affection, she received there, she overcame her depression and became her normal self. She spent the remaining of her days in the Hospice.

c) Ignorance : Ignorance born of illiteracy - It is estimated that India has the highest illiterate population in the world - approximately 500 million. To them cancer is a contagious disease and patients are kept in isolation - the usual story is of the daughter-in-law refusing to let her child go anywhere near a sick grand parent - who yearns for children's company.

d) Superstition : Superstition is in the bone of every Indian, educated or uneducated - only the degree varies. Hence it is not surprising that for some at least, cancer is a curse of the God and the patient must be left alone to serve his karma.

a) Needing Pain Relief: Pain as we know is all pervading problem of cancer. The medical practitioners are largely ignorant of the use of oral morphine or, even if they did know, there is no access to the drug, unless it is in a specialised centre like a Hospice. This is the current picture, one, which has to be rapidly changed, if not, thousands of cancer patients will continue to live and die in pain.

b) Wounds Needing Repeated Dressing: Some wounds are large with copious discharge and need to be dressed five or six times a day. This is not feasible in home or even hospital.

c) Bedridden, paraplegic patients and bedsores: Bedridden paraplegic patients with bedsores are always a challenge to the nursing profession. An Institution like Jeevodaya alone can provide round the clock facilities like waterbeds, dressing, and individualised nursing care.

d) Patients with VVF & RVF (Vesico-Vaginal & Recto-Vaginal Fistulas): Patients with VVF and RVF are usually due to cancer cervix - the constant dribbling of urine and leaking of motion can be acutely embarrassing to the patient in the home environment and also difficult to manage.

e) Ostomy Care: Patients with ostomies generally are too weak to look after themselves and need somebody to help manage their ostomies. It is true that the caretaker can be trained, but for most patients, a caretaker, who cares is hard to come by.

f) Patients needing special nutrition: Some patients are on tube feeds or ostomy feeds. They need a nutritious diet to keep them going. The poor usually feed them with a dilute Kanji (porridge) or half-milk, half-water diet - these patients die of inanition rather than their disease.